Our Mission
To build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 Deletion Syndrome.
By joining forces, we will raise awareness, improve our understanding, and accelerate the diagnosis and treatment of NRXN1 Deletion Syndrome.
Our Objectives
Raise funds to fuel discovery and raise awareness
Organize in-person and virtual meetings to bring together families, researchers, and clinicians
Publish evidence-based guidelines for the treatment of NRXN1 Deletion Syndrome.